罕见-话题@MedSci

#罕见#

673篇内容 | 6469人围观

关注话题

话题活跃用户

#插入话题

插入图片

最新最热

[GetTopicListResponse(id=1467578, encodeId=cd4f146e578b5, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=全新官宣降税，这39个抗癌药、14个罕见病药要降价？, objectType=article, longId=201961, objectId=68b420196136, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=68b420196136, replyNumber=0, likeNumber=62, createdTime=2020-10-12, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=68b420196136, moduleTitle=全新官宣降税，这39个抗癌药、14个罕见病药要降价？, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=68b420196136)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467577, encodeId=51fd146e57797, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=罕见病新药！辉瑞「氯苯唑酸软胶囊」在中国获批, objectType=article, longId=201958, objectId=fabc20195848, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=fabc20195848, replyNumber=0, likeNumber=57, createdTime=2020-10-12, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=fabc20195848, moduleTitle=罕见病新药！辉瑞「氯苯唑酸软胶囊」在中国获批, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=fabc20195848)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467576, encodeId=1a04146e576ac, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=辉瑞罕见病创新药维万心®在中国获批，助力转甲状腺素蛋白淀粉样变性心肌病治疗, objectType=article, longId=201889, objectId=bc0c20188974, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=bc0c20188974, replyNumber=0, likeNumber=74, createdTime=2020-10-11, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=bc0c20188974, moduleTitle=辉瑞罕见病创新药维万心®在中国获批，助力转甲状腺素蛋白淀粉样变性心肌病治疗, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=bc0c20188974)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467575, encodeId=4bc4146e575cb, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=神经母细胞瘤的治疗或迎突破性进展：Nivatrotamab获得FDA“孤儿药称号”和“罕见儿科疾病称号”, objectType=article, longId=201836, objectId=84d4201836d0, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=84d4201836d0, replyNumber=0, likeNumber=58, createdTime=2020-10-10, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=84d4201836d0, moduleTitle=神经母细胞瘤的治疗或迎突破性进展：Nivatrotamab获得FDA“孤儿药称号”和“罕见儿科疾病称号”, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=84d4201836d0)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467574, encodeId=cbaf146e574fd, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=FDA授予TK216“罕见儿科疾病称号”，用于治疗尤因肉瘤, objectType=article, longId=201814, objectId=1b8e20181453, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=1b8e20181453, replyNumber=0, likeNumber=63, createdTime=2020-10-09, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=1b8e20181453, moduleTitle=FDA授予TK216“罕见儿科疾病称号”，用于治疗尤因肉瘤, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=1b8e20181453)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467573, encodeId=217e146e573eb, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=Bluebird突破性基因疗法Lenti-D申请上市！改善致死罕见病CALD患者长期生存结局, objectType=article, longId=201693, objectId=ec9320169308, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=ec9320169308, replyNumber=0, likeNumber=59, createdTime=2020-10-06, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=ec9320169308, moduleTitle=Bluebird突破性基因疗法Lenti-D申请上市！改善致死罕见病CALD患者长期生存结局, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=ec9320169308)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467572, encodeId=8de8146e572cb, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=真·探索发现！66岁大伯肺里咳出一朵“蘑菇”，竟是美国人在鸡窝中找到的罕见菌种！, objectType=article, longId=201623, objectId=726120162393, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=726120162393, replyNumber=0, likeNumber=68, createdTime=2020-10-05, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=726120162393, moduleTitle=真·探索发现！66岁大伯肺里咳出一朵“蘑菇”，竟是美国人在鸡窝中找到的罕见菌种！, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=726120162393)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467571, encodeId=04df146e57147, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=FDA授予IVT-8086治疗骨肉瘤罕见儿科疾病（RPD）称号, objectType=article, longId=201360, objectId=736d20136032, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=736d20136032, replyNumber=0, likeNumber=78, createdTime=2020-09-30, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=736d20136032, moduleTitle=FDA授予IVT-8086治疗骨肉瘤罕见儿科疾病（RPD）称号, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=736d20136032)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467570, encodeId=2fe3146e57015, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=罕见病临床试验网络建设：FDA 加速器计划及反馈意见, objectType=article, longId=201161, objectId=53cc201161a7, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=53cc201161a7, replyNumber=0, likeNumber=66, createdTime=2020-09-26, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=53cc201161a7, moduleTitle=罕见病临床试验网络建设：FDA 加速器计划及反馈意见, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=53cc201161a7)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467569, encodeId=c8a1146e569a5, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=曙方医药与Minoryx达成神经系统罕见病新药Leriglitazone在中国内地、香港及澳门的**授权协议, objectType=article, longId=201120, objectId=e8f320112070, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=e8f320112070, replyNumber=0, likeNumber=60, createdTime=2020-09-25, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=e8f320112070, moduleTitle=曙方医药与Minoryx达成神经系统罕见病新药Leriglitazone在中国内地、香港及澳门的**授权协议, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=e8f320112070)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467568, encodeId=7560146e568ed, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=Pembrolizumab在罕见组织肉瘤中提供临床益处！, objectType=article, longId=201015, objectId=9615201015c4, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=9615201015c4, replyNumber=0, likeNumber=74, createdTime=2020-09-23, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=9615201015c4, moduleTitle=Pembrolizumab在罕见组织肉瘤中提供临床益处！, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=9615201015c4)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467567, encodeId=3b1d146e56785, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=武田中国首届罕见病患者交流峰会成功召开赋能患者组织成长, objectType=article, longId=200825, objectId=54a1200825e0, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=54a1200825e0, replyNumber=0, likeNumber=69, createdTime=2020-09-19, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=54a1200825e0, moduleTitle=武田中国首届罕见病患者交流峰会成功召开赋能患者组织成长, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=54a1200825e0)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467566, encodeId=ef92146e56645, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=又一种罕见病药物国内上市，全国仅约300名患者, objectType=article, longId=200173, objectId=91212001e340, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=91212001e340, replyNumber=0, likeNumber=76, createdTime=2020-09-04, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=91212001e340, moduleTitle=又一种罕见病药物国内上市，全国仅约300名患者, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=91212001e340)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467565, encodeId=a4d4146e56591, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=病理罕见的颌下腺囊肿, objectType=article, longId=199315, objectId=aa731993159f, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=aa731993159f, replyNumber=0, likeNumber=85, createdTime=2020-08-14, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=aa731993159f, moduleTitle=病理罕见的颌下腺囊肿, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=aa731993159f)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467564, encodeId=387d146e564e6, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=“一支药70万元”“国外便宜国内贵”？聚焦“天价”罕见病药, objectType=article, longId=199001, objectId=b8b219900131, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=b8b219900131, replyNumber=0, likeNumber=53, createdTime=2020-08-09, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=b8b219900131, moduleTitle=“一支药70万元”“国外便宜国内贵”？聚焦“天价”罕见病药, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=b8b219900131)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467563, encodeId=cbfa146e563b6, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=FDA授予Paxalisib治疗弥漫性内源性桥脑胶质瘤的罕见儿科疾病疗法称号（RPDD）, objectType=article, longId=198985, objectId=f8a7198985ca, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=f8a7198985ca, replyNumber=0, likeNumber=61, createdTime=2020-08-09, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=f8a7198985ca, moduleTitle=FDA授予Paxalisib治疗弥漫性内源性桥脑胶质瘤的罕见儿科疾病疗法称号（RPDD）, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=f8a7198985ca)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467562, encodeId=4b19146e562da, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=【快讯】国内罕见病互联网诊疗平台，基源与微医建立战略合作伙伴关系！, objectType=article, longId=198417, objectId=a22819841e70, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=a22819841e70, replyNumber=0, likeNumber=66, createdTime=2020-08-01, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=a22819841e70, moduleTitle=【快讯】国内罕见病互联网诊疗平台，基源与微医建立战略合作伙伴关系！, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=a22819841e70)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467561, encodeId=c7e3146e5610d, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=Circulation：与扩张型心肌病密切相关的12个罕见基因变异, objectType=article, longId=198344, objectId=decb19834448, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=decb19834448, replyNumber=0, likeNumber=65, createdTime=2020-07-31, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=decb19834448, moduleTitle=Circulation：与扩张型心肌病密切相关的12个罕见基因变异, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=decb19834448)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467560, encodeId=0a17146e560b3, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=PNAS：耶鲁大学研究：两种药物的结合可治疗罕见退行性疾病！, objectType=article, longId=197897, objectId=988219e897cd, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=988219e897cd, replyNumber=0, likeNumber=109, createdTime=2020-07-23, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=988219e897cd, moduleTitle=PNAS：耶鲁大学研究：两种药物的结合可治疗罕见退行性疾病！, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=988219e897cd)], followStatus=false, userIsMember=false, type=1, lengthMark=0), GetTopicListResponse(id=1467559, encodeId=5a1e146e559e6, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, objectTitle=自体造血干细胞基因疗法OTL-203治疗I型黏多糖贮积症：获得FDA的孤儿药和罕见儿科疾病称号, objectType=article, longId=197883, objectId=268919e88377, topicUrl=null, isHasObj=0, objectCover=null, objectUrl=/article/show_article.do?id=268919e88377, replyNumber=0, likeNumber=78, createdTime=2020-07-23, rootId=0, userName=syscxl, userId=29f36868190, projectId=1, avatar=, status=1, hasArticle=1, attachment=null, ipAttribution=, moduleDTOList=[ModuleDTO(moduleId=268919e88377, moduleTitle=自体造血干细胞基因疗法OTL-203治疗I型黏多糖贮积症：获得FDA的孤儿药和罕见儿科疾病称号, moduleType=article, hrefUrl=https://www.medsci.cn/article/show_article.do?id=268919e88377)], followStatus=false, userIsMember=false, type=1, lengthMark=0)] 梅斯话题小助手

罕见

2020-05-29

syscxl (审核中...)

前往app查看评论内容

#罕见#

全新官宣降税，这39个抗癌药、14个罕见病药要降价？

2020-10-12

syscxl (审核中...)

前往app查看评论内容

#罕见#

罕见病新药！辉瑞「氯苯唑酸软胶囊」在中国获批

2020-10-12

syscxl (审核中...)

前往app查看评论内容

#罕见#

辉瑞罕见病创新药维万心®在中国获批，助力转甲状腺素蛋白淀粉样变性心肌病治疗

2020-10-11

syscxl (审核中...)

前往app查看评论内容

#罕见#

神经母细胞瘤的治疗或迎突破性进展：Nivatrotamab获得FDA“孤儿药称号”和“罕见儿科疾病称号”

2020-10-10

syscxl (审核中...)

前往app查看评论内容

#罕见#

FDA授予TK216“罕见儿科疾病称号”，用于治疗尤因肉瘤

2020-10-09

syscxl (审核中...)

前往app查看评论内容

#罕见#

Bluebird突破性基因疗法Lenti-D申请上市！改善致死罕见病CALD患者长期生存结局

2020-10-06

syscxl (审核中...)

前往app查看评论内容

#罕见#

真·探索发现！66岁大伯肺里咳出一朵“蘑菇”，竟是美国人在鸡窝中找到的罕见菌种！

2020-10-05

syscxl (审核中...)

前往app查看评论内容

#罕见#

FDA授予IVT-8086治疗骨肉瘤罕见儿科疾病（RPD）称号

2020-09-30

syscxl (审核中...)

前往app查看评论内容

#罕见#

罕见病临床试验网络建设：FDA 加速器计划及反馈意见

2020-09-26

syscxl (审核中...)

前往app查看评论内容

#罕见#

曙方医药与Minoryx达成神经系统罕见病新药Leriglitazone在中国内地、香港及澳门的**授权协议

2020-09-25

syscxl (审核中...)

前往app查看评论内容

#罕见#

Pembrolizumab在罕见组织肉瘤中提供临床益处！

2020-09-23

syscxl (审核中...)

前往app查看评论内容

#罕见#

武田中国首届罕见病患者交流峰会成功召开赋能患者组织成长

2020-09-19

syscxl (审核中...)

前往app查看评论内容

#罕见#

又一种罕见病药物国内上市，全国仅约300名患者

2020-09-04

syscxl (审核中...)

前往app查看评论内容

#罕见#

病理罕见的颌下腺囊肿

2020-08-14

syscxl (审核中...)

前往app查看评论内容

#罕见#

“一支药70万元”“国外便宜国内贵”？聚焦“天价”罕见病药

2020-08-09

syscxl (审核中...)

前往app查看评论内容

#罕见#

FDA授予Paxalisib治疗弥漫性内源性桥脑胶质瘤的罕见儿科疾病疗法称号（RPDD）

2020-08-09

syscxl (审核中...)

前往app查看评论内容

#罕见#

【快讯】国内罕见病互联网诊疗平台，基源与微医建立战略合作伙伴关系！

2020-08-01

syscxl (审核中...)

前往app查看评论内容

#罕见#

Circulation：与扩张型心肌病密切相关的12个罕见基因变异

2020-07-31

syscxl (审核中...)

前往app查看评论内容

#罕见#

PNAS：耶鲁大学研究：两种药物的结合可治疗罕见退行性疾病！

2020-07-23

syscxl (审核中...)

前往app查看评论内容

#罕见#

自体造血干细胞基因疗法OTL-203治疗I型黏多糖贮积症：获得FDA的孤儿药和罕见儿科疾病称号

2020-07-23

科室
- - 订阅+
  - 更多科室
工具
服务